No wait, sorry. I guess I’m just inflamed? Whatever.
I’ve been remiss with my latest update. On July 18th I saw a rheumatologist (actually several at once) at Marvelous Ginormous Hospital. They poked me, prodded me, and asked a lot of questions. Then they sent me to have blood drawn.
They agree with my oncologist that my issues (random swellings, including congestion, and hair loss) are probably autoimmune and caused by my treatment. But they don’t follow a normal pattern and don’t appear to be classified as any kind of known disorder. No known disorder means no treatment plan – none other than high doses of ibuprofen until my foot swelling goes down anyway.*
*Spoiler: it’s been a week and half, and the swelling hasn’t gone down.
So while I wait and grow steadily balder, the rheumatologist is going to confer with an ENT who specializes in autoimmune-caused sinus issues. And that’s where I’m at. Swollen and shedding, but breathing. (Until insurance cuts off my sinus meds which yes, they did, but my original ENT found a way around that. Because she’s clever and they’re assholes.)