Sorry it took me a while to post this. Life, ya know?
Some news since my last post. The pain has totally subsided, as has the twitching and tingles. My ear, inside, still feels odd, but it’s either getting better or I’m getting used to it because I don’t notice as much anymore.
Anyway, I met with my surgeon to discuss the weirdness, and he agreed with my oncologist that all seems normal. He’s not concerned yet, although he agrees we should keep an eye on things. He thinks it was actually strange (“rare”) that my face/head went back to normal in the first place, so on one hand, we shouldn’t be surprised that I’m experiencing these symptoms. The other, of course, is that it’s weird that the symptoms are only showing up now.
Basically, I’m doing these oddly as usual. So that’s all for the time being, hopefully.
Yeah, it’s been a while. But you know what they say: with cancer, no news is good news. Okay, maybe they don’t say that, but they should.
Things have been uneventful here. I was scanned again last week, and the good news is my scans were all clear! That’s two years worth of clear scans since my last treatment.
So why am I posting? Because I’m no longer convinced the scans are the whole picture. Um, pun not intended. I feel like I have an earache in my left ear, and while sometimes an earache is just an earache is just an infection, my overall pain levels (head, not ear) have been on the rise. And nerves in my face are twitching. The last time they did was before the oh-so-fun paralysis kicked in.
My oncologist knows. He’s examined my scans multiple times, felt up my face and lymph nodes, and poked around inside my ear and pronounced the skin normal looking. He’s not overly concerned yet. Although Betty was the master at hiding from my scans before, the docs have a pretty good base of scans since my last surgery to draw on for comparisons. So I’m supposed to be giving things another week and seeing if the pain goes away on its own. (I’ve had pain on and off for the last couple years; that’s nothing new. It’s just that this pain is different, and has twitching with it.) It’ll be a week on Monday, so I guess I’ll see what the weekend brings.
Preferably nothing cancerous.